Cure FD Foundation Works to Prevent FD
On April 29, 2005, two representatives of the Cure FD Board of Directors, Mavis and Al Feinberg, met with California State Assemblyman Paul Koretz of the 42nd Assembly District to discuss introducing a bill to the State Legislature which would include FD carrier testing along with the Tay Sachs testing, which is already recommended for certain populations when couples take out a state marriage license. Such a measure would prevent many cases of FD in California in the future and would save the state massive amounts of money which would otherwise be spent on lifetime care and treatment for those so severely disabled and ill.Assemblyman Koretz responded that he will work to see that such a bill will be introduced to the Assembly at the coming legislative session in Fall of 2005.
From left, Assemblyman Paul Koretz, Mavis and Al Feinberg